How much do I love this Chesterfield chair!! I have been meaning to write this post for a while but haven’t much felt like it. Then Roz wrote this amazing post for the IFB, which you should go over and read – then come right back:
Blogging Against Adversity
Both Roz and I have had a medical condition impact our lives so much that we had no choice but to voice it on our blogs. We both agree that whatever fears we had about doing so were swept away by the genuine love and support of our readers and friends. So I thought I would take this chance to give you an update and to fill in new followers. I have rheumatoid arthritis you can read about it here and a follow up regarding problems with the condition and fashion here. Besides the obvious problems such as being in pain and general exhaustion, drug trials and their side effects it has impacted my life in ways I never really imagined. I guess until you go through something like this, you can watch all the episodes of E.R and House you like but you will never know the little things which really get to you.
I don’t wear flats, never have, never will. Er right ok so how do you wear 3″ heels when you knee is so painful it hurts to move, your hip is grating in the socket so much the sheer feeling makes you feel nauseous and your feet, every single joint, feels like it is stuffed with cotton-wool. Even if you can get your swollen little feet into your shoes you certainly aren’t walking anywhere in them. So I have spent the best part of this year in Ugg boots- I am not impressed about this one bit. I have 3 pairs of Uggs now, I have a pair of black flat army boots for when it is rainy, my trusty old Chanel ballerinas and Vivienne Westwood pirate boots for when it is sunny. I have taken to wearing a tatty old black cardi (it is Westwood and thus I will wear it until it drops to shreds) over everything to cover the wrist and elbow supports. Loose fit black peg trousers have always been my thing and my collection has grown to disguise the knee supports. When I do wear heels I now pull them out of my bag at the desired destination – on a positive note it will save me a fortune in re-heeling. Of course there is a lot of smoke and mirrors with the blog. You don’t see the Ugg boot days, I take off the supports for the photos and I certainly don’t wear bloody flats in the photos. I don’t just do this to make the photos look better, though evidently they do. But it makes me feel better that I can at least see what the outfit was intended to look like, rather than having to wear it with the flats and insanely huge bag stuffed with spare supports, gloves, shoes and meds. Clutches have been well and truly abandoned of late, as have totes which put strain on my wrist.
Fortunately the doctors also diagnosed me with a vitamin D deficiency, the medication for this worked fast so I am ten times better than what I was before Christmas, where I could barely get out of bed. I have now started disease modifying drugs to fight the RA, the effects of which I should see in around 8 weeks – if they work for me. I have tried different types of anti-inflammatory all of which my reaction to was far worse than the original problem and decided to show themselves just after the med’s had started working. The last ones I had tried gave me one day of being pain free before the worse onslaught of side effects I have ever had. That was a very strange feeling, I have gotten so used to dealing with the pain I had totally forgotten what it was like to not have it.
But anyway as long as the goodish days are more than the very, very bad ones I can cope for with that. I do worry I will never get the life back I used to have. I can’t burn the candle at both ends and really have to look after myself.
Helga reminded me the other day that Vivienne Westwood used to receive people when she was still in bed. In fact she liked to do everything from her bed, even make the clothes, so next time I am stuck in bed with my laptop I will just pretend I am Queen Viv. I admit I have taken to wearing my pink furry Prada scarf with my PJ’s, I am ridiculous I know, but it makes me smile.